We were discharged from the hospital Tuesday April 5th and are now staying in Ronald McDonald. Even though the two are connected via a walkway, yesterday was the first day we have not been in the hospital in a couple of weeks...it was nice :). While it is not home, it is better being in our own space with a little more freedom. I am already home sick but am trying to focus on all the positives and how well Thatcher is doing.
Discharged!
Cleaning once we Got "Home"
We actually got out and about yesterday to pick up a few supplies and just take a break. It is slightly nerve wracking to be out with Thatcher. We are much more careful, wash and sanitize our hands constantly, and don't get him out of the stroller. I almost feel as if I have a newborn again. We have taken Thatcher home from the hospital more times than we would have liked, but at least we are getting to go home. Like most thing, it is going to take time to get used to as well as to heal.
Out and About
Thatcher is doing really well. He is eating like crazy so hopefully he'll start gaining some weight. He hasn't been sleeping very well. I think he is still sore and uncomfortable some, but he is generally in a better mood than before transplant. We took him to clinic for the first time this morning. He had labs (two sticks today :( unfortunately) where they will continue to monitor his liver labs and Prograf (his anti-rejection/immunosuppression medication) levels. The doctors will adjust his Prograf levels to find a suitable dose that prevents rejection while keeping infection at bay. This is a continuous process that will take time but hopefully get better the further from transplant we get. One day at a time.
Eating Some Cereal in the Hospital
Amazing!!! and Precious!!!! It is amazing how well you and Thatcher have done so far and that little face with cereal all over it is simply PRECIOUS. We are so happy that prayers have been answered. We continue to pray for all of you. Thank you Jessie for your blogs and thank you for your courage, your strength and your positive attitude. With it and God's help, this time in your lives has and will continue to unfold into a beautiful story of faith, hope, and love!
ReplyDeleteI LOVE those sweet sweet smiles!!! He is just precious and I loved seeing him eating at the end. Sounds like he is doing great. I am praying for him to rest better. Bless him. I know you are so glad to be out of the hospital, but i know you have to be missing home and Amelia so much! Just remember that in the grand scheme of things...this won't last long and you will be home with your healthy boy and family! Love to you guys!
ReplyDeleteSuch great news! Is it my imagination or is he smiling more than before? That little cereal covered face is darling.
ReplyDeleteThanks everyone for your support! Yes, this experience is a lesson in faith - faith in God and his plan as well as in Thatcher. We can't give up! Yep, Thatch seems to be smiling more (I'm sure he feels better) so this encourages us.
ReplyDeleteI love the cereal face. So sweet!
ReplyDelete