Thatcher is continuing to heal...praise God. He looks so good and we have come so far from last weekend. He takes everything orally now. He is on pain medicine as needed and continues to eat more and more. We administer his daily meds at 8am and 8pm, which is much simpler than what we were used to. His labs and liver numbers continue to look good. We really could not ask for more. He lost some weight through surgery, but this is normal. I can't wait to fatten him up now!! 
Thatcher is almost back to his old self it seems. He is more and more playful and we work on sitting him up several times a day. He is still sore but doing better with this also. The doctors have even talked about releasing us to Ronald McDonald sometime next week!
In preparation for discharge, BJ and I have also been going through daily teaching/lessons on life after transplant. There hasn't been any completely new information. It is overwhelming and can cause me to worry about the future sometimes, but it is just alot of information at once. I still pray and hope for a great future for Thatcher and our family. Thatcher will continue to take medicine, but it should drop to a very small amount sooner than later. It also seems to be something that will get better the further out from transplant we get. It will always have to be managed and we will be more concious of germs than before. I'm sure there will be rejection episodes, but our coordinator, who teaches our class, says it is even less to manage than what many diabetic kids deal with (a disease more people are familiar with I think).
Amelia, mom, and my sister left today. We hated to see them leave, but it is a little less hectic without Amelia running around :). We had a wonderful visit!
Tickle Time!
Amelia dressing up like one of the nurses
Thanks to everyone who have sent us cards and care packages. It is such a nice dose of home. Thanks for everyone still praying, I know it is getting us through one day at a time.
The picture of Thatcher and BJ is wonderful - it is so good to see Thatch smiling - it looks like he was never sick! He will have a wonderful future, thanks to the loving and courageous gift you have given him. You have many, many happy years ahead of you. And I am going to pray for what the doctors are talking about - releasing him to Ronald McDonald House! That will be ALMOST like being at home. Not quite, but it won't be the hospital.
ReplyDeleteTake care and know we are all praying you to recovery and a safe journey back home!
I absolutely can't believe the first picture! Thatcher looks so great and looks like he is feeling good too. This is such wonderful news to hear Jessie! Thank the Lord for answered prayers and I am still praying as you continue on this journey to better health for Thatcher! I'm so glad you had a good visit with Amelia. Wonderful news that Thatcher possibly being released next week!!!! Yayyyyyy!
ReplyDeleteJessie and BJ,
ReplyDeleteI have the Link blog on my homepage so that I can check it often! You are in my thoughts daily and I'm so thankful that Amelia was able to come and be apart of the celebration of life that is occurring all around you.
What an amazing time of the year to receive new life! God's resurrection is upon us and each of you have a new appreciation for what it means to be created new and whole once again. May each day be a reminder of how deeply you are loved and how much you are missed.
As I drive past the Link for Life poster each day on my way to the church I give thanks for your courage and the journey you are on. All four of you have been courageous in your own right over the past eight months; each of you are an amazing witness to love and generosity.
Know that we are keeping you close in our thoughts and prayers.
The pictures of the kids have been amazing! What a joy it has been to see the 4 of you together laughing and enjoying a taste of life as a family.
You guys look great!
Pastor Amanda