1 week ago we were in a much different place than today! I feel as though we are back on the road to recovery after our setback on Sunday. Yesterday was much more relaxing and pretty uneventful. Today has pretty well gone that way also. Thatcher's liver labs are looking great and his numbers continue to fall, indicating a good functioning liver. His total biliruben was the lowest ever at 1.7 today. I held Thatch alot yesterday. 
He seems to be in more pain today, which is understandable after being opened twice in 1 week. He is now completely unhooked from IV's and takes everything orally, including his pain meds. He still has the IV in his neck for lab access. He has had a fever off and on (he does not have one currently), but all cultures are clear (meaning they don't show a bug or other reason for the fever). He is finally resting with some extra pain meds. He is continuing to get breast milk in a bottle every few hours.
BJ has been by Thatcher's side constantly for the last several days while I'm still recouperating. He has finally gone back to our room for a break leaving me and mom to care for him. I still cannot lift him and probably won't be able to for a while. I'm extremely sore and staying on top of my pain meds. It's hard for me to stand completely upright and hurts to laugh, cough, blow my nose, etc. I can only imagine what Thatcher is feeling :(.
We went through our first round of discharge teaching today. We have a large green binder with tons of information on medicines and different instructions for Thatcher's care. While it is overwhelming, it is somewhat of an improvement from where we were before transplant. Thatcher already takes fewer medicines than he had, and we have hopes for him to take even less in the future. His most important medicine, Prograf, is the immunosuppresant that keeps his body from fighting his new liver. He will be on this forever, as of right now, and these levels are monitored very closely and adjusted alot. Thatcher will experience rejection at some point, but it is closely monitored and can be maintained. In general, the further out from transplant, the better he is expected to do.
What a wonderful thing to log in and see the word "uneventful"! Just what you want to hear. The picture of you, Jessie, holding Thatcher, is beautiful - you look so happy and well, and so does Thatcher. Bless his little heart - so much for such a little guy to go through (and you too!).
ReplyDeleteI am so thankful for your post, and so glad for such good news!
Oh wonderful news! Just the perfect end to my night as I have been wondering how you all were doing. How good you both look!!! Thatcher's color is great and it sounds like his billi is looking good. Music to my ears! Still praying as always that you guys have another uneventful day tomorrow and that you both feel better day by day. Hang in there girl...you are amazing!
ReplyDeleteFabulous news!! You both look so great, I'm sure you don't feel like it but you do. I'm so excited that you are going to get to see Amelia tomorrow. She was a hoot yesterday, just a little chatter box. :) Can't wait to have both her and thatcher around he is missed. We are still praying.
ReplyDeleteSo look forward to your posts. You look more rested this time. Take care of yourself, Thatcher will need your strength more after he leaves the hospital. He's a precious child. I love you all.
ReplyDeleteYou are my hero. This is amazing new! Still praying for you all and will keep checking in for updates. SO thankful that you and your boy are on the mend!
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