Thatcher had a relatively good clinic visit Friday...he gained 12 ounces! We've been working hard on his bottles so maybe it paid off. He did have to get his blood drawn, but they got it on the first stick, yay! The nurses are really sweet and come around to see sweet Thatcher. I told them we have a date set for transplant, and they will be praying too.
He was prescribed a new medication, an anti-viral, that is supposed to also help with itching. He was taken off of one of his medications (Ursodiol) which is the "bile binder" since that really won't help at this point. I think that Thatcher has been pretty uncomfortable with the itching lately. His biliruben is still climbing at 10.4. Levels from last week indicate that despite all of his supplements, his nutrition level is still only about half of what it should be. According to Dr. Gillis, we've gotten about all the mileage out of this liver we can. However, she describes Thatcher as "remarkable" considering the condition his liver is in.
Only 2 more clinic visits until we leave for transplant (until we return of course)!
I so hope the meds help his itching and he gets some relief soon! I know it must be so good to know that you are going to put an end to all of this by giving Thatcher part of your liver! Continuing to pray for peace for you guys as you near the transplant.
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