We saw Dr. Gillis Friday before last and were taken off 2 meds...yay!! I was especially excited about being taken off Prednisone since it is a strong medication with long term side effects. His labs were the same as last time, which is good. He is growing and gaining but still only in the 10th percentile for weight and 25 percentile for height. We get repeat labs the 22nd, exactly 6 months after transplant. We also get to drop another medication that day which he has taken since his diagnosis. This will leave us with a grand total of only 6 meds!
Future Doctor...he seriously wears this on his own all the time!
I get this view alot!
Life in the Link house is the same as usual. Pretty boring but working every day to be grateful for how far we've come. I love this time of year, but just yesterday it hit me that this time last year we thought our baby boy was perfectly healthy. We had no idea our lives were about to be turned upside down. Thatcher's 2 month checkup was on September 23rd 2010 and his Kasai procedure was the 27th...definitely the worst time of our lives. BJ and I both agree that diagnosis and all the unknown has been the worst part. Luckily, we have fared well, and I wish I knew then what I know now, but the doctors really could not be certain if we would be so lucky either. I wish I had known I had his little golden ticket tucked in my right side and that transplant, while certainly not ideal, has been Thatcher's best chance at a quality life.
I pray everyday that Thatcher continues to heal completely, lives a full life, and gets off his medication one day. He is such a funny guy. He doesn't talk as much as Amelia did at his age, but he lets you know what he does and does not want with his own set of points and grunts. He loves water, bath time, and the toilet (putting things in and taking them out!). He's walking everywhere and likes to climb things...pretty typical boy I think. There really is so much to be thankful for including a much better fall 2011!!
Go Vols!...(funny picture, Amelia likes to hide at the door before people come in)
