We saw Dr. Gillis Friday before last and were taken off 2 meds...yay!! I was especially excited about being taken off Prednisone since it is a strong medication with long term side effects. His labs were the same as last time, which is good. He is growing and gaining but still only in the 10th percentile for weight and 25 percentile for height. We get repeat labs the 22nd, exactly 6 months after transplant. We also get to drop another medication that day which he has taken since his diagnosis. This will leave us with a grand total of only 6 meds!
Future Doctor...he seriously wears this on his own all the time!
I get this view alot!
Life in the Link house is the same as usual. Pretty boring but working every day to be grateful for how far we've come. I love this time of year, but just yesterday it hit me that this time last year we thought our baby boy was perfectly healthy. We had no idea our lives were about to be turned upside down. Thatcher's 2 month checkup was on September 23rd 2010 and his Kasai procedure was the 27th...definitely the worst time of our lives. BJ and I both agree that diagnosis and all the unknown has been the worst part. Luckily, we have fared well, and I wish I knew then what I know now, but the doctors really could not be certain if we would be so lucky either. I wish I had known I had his little golden ticket tucked in my right side and that transplant, while certainly not ideal, has been Thatcher's best chance at a quality life.
I pray everyday that Thatcher continues to heal completely, lives a full life, and gets off his medication one day. He is such a funny guy. He doesn't talk as much as Amelia did at his age, but he lets you know what he does and does not want with his own set of points and grunts. He loves water, bath time, and the toilet (putting things in and taking them out!). He's walking everywhere and likes to climb things...pretty typical boy I think. There really is so much to be thankful for including a much better fall 2011!!
Go Vols!...(funny picture, Amelia likes to hide at the door before people come in)
So much to be thankful for indeed!!! It is crazy how far you all have come since last year...and I know you never want to be in that place again. I will never forget when Brad told me the news. We just sat there and didn't know what to do/or say. I just looked at Braden...thinking of Thatcher being the same size and just cried. Praise the Lord that you were his ticket to being healed! I pray that he gets off of his meds someday and it sounds like he is making terrific progress! We are happy for you guys and hope that he continues making big strides in the right direction every day! Thatcher and Amelia are so cute together! We are so thankful to have you guys as such sweet friends...the clothes that you gave us are really more than we could have imagined. I sent you a message on FB and want you to know we will be sending you something. I am so ashamed I haven't gotten it in the mail before now! We REALLY appreciate you guys! Love ya!
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Jess, I am amazed at how much he looks like his baby pictures again. While reading the blog, his pics at the top were lined up with the baby pics to the side. You'd never know how much he's been through to look at him now! What a sweet little stink pot!!!
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